Wednesday, July 15, 2009

Red Flag on baby


Alright i thought i would do a quick update on whats going on with me and mainly the baby, and ask for urgent and much needed prayer before tomorrow at 3:30. The above picture is the main problem and cause for concern for our last ultrasound.

Yesterday (Tuesday) we went in for our normal check up, and our midwife Deb told us she wanted to talk to us about the ultrasound. She went on to tell us that the baby is at risk and a "Red Flag" is up for Trisomy 18 (ill explain later on). Our last ultrasound the week before didn't go so well all together it turns out. The baby's hands were clenched the entire time of the ultrasound, which is a sign and symptom of Trisomy 18. She told us that she was going to be completely honest with us and if she thought there was anything to look into she would. SO we have another ultrasound tomorrow to see if the baby opens up his hands or not. *sigh* Its a pretty normal thing to be double checking (i guess?) but that alone gives me no comfort. Dan, the saving grace of the day, started to ask all the normal questions, while i sat there and tried to listen. Some of the things that have given us so much hope is that Trisomy 18 babies are normally alot smaller, and He is measuring right on track along with me measuring perfectly. Also, during the first ultrasound we had at 15 weeks His little hands and fingers were moving around just fine, and the last thing was that He would have a short neck, which He again doesn't. The list goes on and on, all of which our baby checks out just fine as far as we know. So basically everything for the next few months lies in the baby's cooperation tomorrow. There is no way for us to make him open them up and if he doesn't its more of a waiting and wondering game.

Where we're at..

Dan is doing great, as usual.. haha After talking to our midwife Deb and getting some answers he is at complete ease, and comforting me. haha As i said today has been much better, compare to today. On one hand i am easily and fully trusting in the Lord. I know He has a plan in all of this, no matter that is going on. I know we have a fully healthy baby, and he has been healthy up to the last ultrasound and is still checking out just fine. Besides the clenched fists. There is a WHOLE NEW matter of trust that comes with something like this, especially it being your BABY. I went to the prayer room today to sort out my thoughts and just talk to the Lord, and before i even got my bible or sat down, i was in tears. The singers were singing one of the Psalms, and it was all about putting our whole trust in the Lord, and Him fully an completely coming through. A chorus they sang today that hit me so hard was "If he has birthed a cry in you, he is faithful to bring it to pass" It was good, and then i went and sorted life kinda things out with a good friend. Its been a good day, and Im not worried. Just a little tense about if he will cooperate tomorrow or not.

And then on the other hand I cant just ignore whats going on. The reality could be real of having a baby like this, and its terrifying. I want nothing more then a healthy baby, there is nothing i can do but trust the Lord. I am emotionally drained with this put at our door step. I dont want to carry this baby for two more months NOT knowing if he is healthy, or will make it to the end. We're just praying for answers tomorrow!! Everything seems to come in waves, and when it does i just cry. I need prayer for my mind and heart's sake. I just need peace.

Here is a quick and short overview of Trisomy 18:

There are 23 pairs of human chromosomes. In Trisomy 18 (Edwards syndrome), there is an extra chromosome with the 18th pair. Like Trisomy 21 (Down syndrome), Trisomy 18 affects all systems of the body and causes distinct facial features.

Trisomy 18 occurs in 1 in 3,000 live births. Unfortunately, most babies with Trisomy 18 die before birth, so the actual incidence of the disorder may be higher. Trisomy 18 affects individuals of all ethnic backgrounds. (I also read that the baby is carried full term most times and then born still)

Trisomy 18 severely affects all organ systems of the body. Symptoms may include:

* Nervous system and brain - mental retardation and delayed development, high muscle tone, seizures, and physical malformations such as brain defects
* Head and face - small head (microcephaly), small eyes, wide-set eyes, small lower jaw
* Heart - congenital heart defects such as ventricular septal defect
* Bones - severe growth retardation, clenched hands with 2nd and 5th fingers on top of the others, and other defects of the hands and feet
* Malformations of the digestive tract, the urinary tract, and genitals


This is as much as i am going to put or look up, we're believing for a healthy baby.
Please pray for us through out the night and tomorrow!

Thanks,
Ash Dan and Baby

3 comments:

  1. AnonymousJuly 15, 2009

    Cast your cares on HIM for HE cares for you!
    He is a healthy baby in Jesus' Name!
    Brooke

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  2. Ash, I've shared this with a few friends and my mom and Ted and we are praying!!!

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  3. prayers for you and your baby :)

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